The online version of the Shaky Times newsletter is in it’s second month after getting great reviews from the initial publication. This month we are adding a new feature called Member Profiles where we will tell the story of one of our members. This month, Howard Zalken, the PNMD co-president is our subject.
If you would like to tell your story, please contact me, Kevin Deane with this link. If people find the stories interesting and entertaining, we will do one per month.
Starting this month, the newsletter will also be here on the website on it’s own page.
Also, we would like people to review the many books and resources that are in the library. If you would like to tell us what you think about a particular book, manual, medical report or handout, please contact me at the link above.
We have another new book in the library, this one by Atul Gawande, a practicing surgeon. This is his 4th book. Check with Abraham at the next meeting to check it out. Here’s the description:
Medicine has triumphed in modern times, transforming birth, injury, and infectious disease from harrowing to manageable. But in the inevitable condition of aging and death, the goals of medicine seem too frequently to run counter to the interest of the human spirit. Nursing homes, preoccupied with safety, pin patients into railed beds and wheelchairs. Hospitals isolate the dying, checking for vital signs long after the goals of cure have become moot. Doctors, committed to extending life, continue to carry out devastating procedures that in the end extend suffering.
Gawande, a practicing surgeon, addresses his profession’s ultimate limitation, arguing that quality of life is the desired goal for patients and families. Gawande offers examples of freer, more socially fulfilling models for assisting the infirm and dependent elderly, and he explores the varieties of hospice care to demonstrate that a person’s last weeks or months may be rich and dignified.
Full of eye-opening research and riveting storytelling, Being Mortal asserts that medicine can comfort and enhance our experience even to the end, providing not only a good life but also a good end.
There’s a new book in the library. You can check it out with Abraham at any of the meetings. Would you care to review it for the August Shaky Times newsletter? If so, please email Howard Zalkin at firstname.lastname@example.org
Here’s the synopsis:
Carol developed the first typical symptoms of Parkinson’s disease in 2011, but the diagnosis was soon changed to Lewy Body Dementia (LBD). The first physical symptoms were quickly followed by hallucinations, which at first were benign, but quickly became quite scary. While caring for Carol, Bob slowly, painfully learned how to cope with her physical as well as mental symptoms. This book describes those lessons in the hope that others caring for LBD patients will benefit from them, and their path down this road will be easier.
The poker tournament was a success!! Money was raised and people had a good time. Someone provided a few pictures so have look at the poker tournament page to see if you are one of the lucky few to get into the pix. Here’s the link to the pictures and results- Poker Tournament 2017
This poem was written by one of our own, Carol Peplinski. Enjoy!
You rob me of my voice, I still speak
You rob me of my rhythm, I still dance.
You rob me of my taste, I still eat
You rob me of my sense of smell, I still appreciate the roses.
You rob me of my leg muscle strength, I still walk
You rob me of my ability to hold a pen, I still write.
You rob me of my balance, I still practice yoga
You rob me of my happiness, I still smile.
You rob me of my swallow, I still drink
You rob me of my brain cells, I still think.
Parkinson’s, you are a Robber Baron, but I am still the keeper of this beautiful body.
By Carol Peplinski,
a PD survivor since 2008.
Robert Cochrane, the Director/Producer of the film “Boys of Summer” is screening his latest documentary, “Boys of Summer – Second Base” in the Oak Room at the Walnut Creek Library on May 27th at 6PM. Seating is limited at the venue so you should RSVP to email@example.com as soon as you can. There is a suggested donation of $10.00.
This film is the second in a series of six. The first “Boys of Summer” was shot in 2004 and released in 2006. It follows Robert’s dad, who has Parkinson’s Disease, and Robert as they road-tripped 20,000 miles in two months to see a game at each of the 30 MLB stadiums on less than a shoestring budget. It can be seen here (for free).
“Boys of Summer – Second Base” picks up ten years later as the promise we heard about a cure for Parkinson’s Disease within 10 years never materialized. The great news is, my dad is still fighting – as he shows in the film. He’s also a grandfather now and is passing his love for the game on.
Visit the website to learn more about the project and films. http://www.bosmovie.com. You can also see the trailer there.
If you have any questions regarding the film or the screening, you can contact Robert Cochrane at 702-575-8841.
Let’s get out and support this film. Who’s bringing the popcorn??
Here’s a new book in the library that you can find at this month’s meeting. Abraham is always looking for new and interesting books and publications related to Parkinson’s disease, research and treatment. He has a number of titles available, some of which are free and you can keep. Others are available for check out. Stop in to see what else is new and say hello.
Reverse Parkinson’s Disease
by John Pepper
“John Pepper was diagnosed with Parkinson’s disease in 1992. After only six years of regular, energetic exercise, which has since been proven to slow down or even reverse Pd, and taking medication, which has also since been proven to slow down or reverse Pd, he no longer appears to have Pd, although he still has many of the symptoms. During the first ten years, if he stopped either the exercise or the medication, his symptom
s soon returned. He does not claim to be cured, but he is able to lead a normal life today. His positive attitude and determination to stay ahead of this terrifying condition highlight a new approach to dealing with Pd. John’s story is a portrayal of courage, showing the power of focusing on and being committed to one’s beliefs. One can greatly admire his determination and self-motivation, as seen in his conscious efforts to correct and adjust his movements, which in itself is no small achievement. His positive attitude has been further enhanced by the warm and encouraging support of his wife, Shirley, and family. This close family relationship has been a positive factor in helping John cope with his disability.” –Publisher description.
Bill Clinch wrote about his time at the Michael J. Fox forum in Washington, D.C. Check it out in the posts along the right side of the page.
We have a new book in the library that you may be interested in. Please see the description below as it is the second edition and there have been some updates from the first edition. You can find this book at the next meeting on the library table.
The New Parkinson’s Disease Treatment Book
Partnering with Your Doctor To Get the Most from Your Medications
J. Eric Ahlskog, PhD, M
- The definitive guide for Parkinson’s Disease patients and their families
- Offers a crystal-clear, nuts-and-bolts approach to the treatment of PD
- Distilled from the author’s nearly thirty years of experience as a clinician and researcher
- Educates patients so that they can better team up with their doctors to do battle with the disease, streamlining the decision-making process and enhancing their treatment
New to this Edition:
- Updated chapters help patients and their caregivers develop a basic, core understanding of the diagnosis, treatment, course, and likely complications of the disease
- Thoroughly revised to reflect new protocols for medications
- The Second Edition also contains new information about the genetic and hereditary pattern of the disease; the effects of fluctuating hormones on disease symptoms; and other cutting-edge research.