Blog Post Summarizing January Presentation by Bob Wolf
At the January meeting, member Bob Wolf shared his learning experience in dealing with his wife, Carol’s, Lewy Body Dementia. He has written a slim book on his experiences, titled Honey, I Sold the Red Cadillac . Robin Riddle, of the Brain Support Network, has posted a blog including notes from his talk, taken by Denise Dagan. You can read the blog here: https://www.brainsupportnetwork.org/talk-by-local-lewy-body-dementia-support-group-member-on-coping-with-a-spouses-reality/
Article on Benefits of Rock Steady Boxing
Many of you realize the importance of exercise for all of us, not just those with Parkinson’s. But it’s perhaps more important for people with Parkinson’s because of the benefits not only for body but for mind. More than one study has shown that exercise has huge benefits for Parkinson’s patients. And it can really be fun!
The November issue of Neurology Now has an article titled “Parkinson’s on the Ropes” about Rock Steady Boxing. Here’s the link:
The January meeting including a presentation from the local Rock Steady gym staff. Rock Steady Boxing classes are offered locally at Crossfit Overwatch Gym, 1990 Olivera Road, Suite D, Concord, CA, (925) 785-1272.
Support PNMD with Amazon Smile Purchases
Amy Van Voorhis has set up PNMD to be a recipient of donations from the Amazon Smile program. If you shop on Amazon, you can make sure that Amazon Smile donates a portion of your shopping proceeds to PNMD! Here’s the scoop-
Shop on AmazonSmile and Earn Free Money for PNMD
Do you shop online at Amazon? Would you like to easily earn free money to help support PNMD? Good news – you can do both at the same time! Here’s how:
AmazonSmile (smile.amazon.com) is a website operated by Amazon that lets customers enjoy the same wide selection of products, low prices, and convenient shopping features as on amazon.com. The difference is that when you shop on AmazonSmile, the AmazonSmile Foundation will donate 0.5% of the price of your eligible purchases to the charitable organization you select. You pay the same price for your items as you would on amazon.com, and the donation is automatically sent directly to your selected charity. (Eligible products are marked “Eligible for AmazonSmile donation” on their product detail pages.)
PNMD, as a registered 501(c)(3) non-profit organization, is eligible to receive donations from AmazonSmile. To get started generating donations for PNMD:
- Go to smile.amazon.com from the web browser on your computer or mobile device and log in using your existing Amazon account (or create an account if you don’t already have one).
- Before you start shopping, select Parkinson Network of Mt Diablo to receive the donations generated by your purchases. (The website will remember your selected charity on future visits, so you don’t have to do this step again unless you want to select a different charity.)
- Then just make your purchases and the donations generated will automatically be sent directly to PNMD.
- Remember to shop on the smile.amazon.com site in the future, as donations are not generated on the regular amazon.com site.
With the holiday shopping season upon us, now is a great time to start using smile.amazon.com ! Tell your family and friends too! Thanks in advance for your AmazonSmile donations!
If you have any questions, contact PNMD’s treasurer, Amy Van Voorhis, at firstname.lastname@example.org.
We have another new book in the library, this one by Atul Gawande, a practicing surgeon. This is his 4th book. Check with Abraham at the next meeting to check it out. Here’s the description:
Medicine has triumphed in modern times, transforming birth, injury, and infectious disease from harrowing to manageable. But in the inevitable condition of aging and death, the goals of medicine seem too frequently to run counter to the interest of the human spirit. Nursing homes, preoccupied with safety, pin patients into railed beds and wheelchairs. Hospitals isolate the dying, checking for vital signs long after the goals of cure have become moot. Doctors, committed to extending life, continue to carry out devastating procedures that in the end extend suffering.
Gawande, a practicing surgeon, addresses his profession’s ultimate limitation, arguing that quality of life is the desired goal for patients and families. Gawande offers examples of freer, more socially fulfilling models for assisting the infirm and dependent elderly, and he explores the varieties of hospice care to demonstrate that a person’s last weeks or months may be rich and dignified.
Full of eye-opening research and riveting storytelling, Being Mortal asserts that medicine can comfort and enhance our experience even to the end, providing not only a good life but also a good end.
There’s a new book in the library. You can check it out with Abraham at any of the meetings. Would you care to review it for the August Shaky Times newsletter? If so, please email Howard Zalkin at email@example.com
Here’s the synopsis:
Carol developed the first typical symptoms of Parkinson’s disease in 2011, but the diagnosis was soon changed to Lewy Body Dementia (LBD). The first physical symptoms were quickly followed by hallucinations, which at first were benign, but quickly became quite scary. While caring for Carol, Bob slowly, painfully learned how to cope with her physical as well as mental symptoms. This book describes those lessons in the hope that others caring for LBD patients will benefit from them, and their path down this road will be easier.
The poker tournament was a success!! Money was raised and people had a good time. Someone provided a few pictures so have look at the poker tournament page to see if you are one of the lucky few to get into the pix. Here’s the link to the pictures and results- Poker Tournament 2017
This poem was written by one of our own, Carol Peplinski. Enjoy!
You rob me of my voice, I still speak
You rob me of my rhythm, I still dance.
You rob me of my taste, I still eat
You rob me of my sense of smell, I still appreciate the roses.
You rob me of my leg muscle strength, I still walk
You rob me of my ability to hold a pen, I still write.
You rob me of my balance, I still practice yoga
You rob me of my happiness, I still smile.
You rob me of my swallow, I still drink
You rob me of my brain cells, I still think.
Parkinson’s, you are a Robber Baron, but I am still the keeper of this beautiful body.
By Carol Peplinski,
a PD survivor since 2008.
Here’s a new book in the library that you can find at this month’s meeting. Abraham is always looking for new and interesting books and publications related to Parkinson’s disease, research and treatment. He has a number of titles available, some of which are free and you can keep. Others are available for check out. Stop in to see what else is new and say hello.
Reverse Parkinson’s Disease
by John Pepper
“John Pepper was diagnosed with Parkinson’s disease in 1992. After only six years of regular, energetic exercise, which has since been proven to slow down or even reverse Pd, and taking medication, which has also since been proven to slow down or reverse Pd, he no longer appears to have Pd, although he still has many of the symptoms. During the first ten years, if he stopped either the exercise or the medication, his symptom
s soon returned. He does not claim to be cured, but he is able to lead a normal life today. His positive attitude and determination to stay ahead of this terrifying condition highlight a new approach to dealing with Pd. John’s story is a portrayal of courage, showing the power of focusing on and being committed to one’s beliefs. One can greatly admire his determination and self-motivation, as seen in his conscious efforts to correct and adjust his movements, which in itself is no small achievement. His positive attitude has been further enhanced by the warm and encouraging support of his wife, Shirley, and family. This close family relationship has been a positive factor in helping John cope with his disability.” –Publisher description.
Bill Clinch wrote about his time at the Michael J. Fox forum in Washington, D.C. Check it out in the posts along the right side of the page.
We have a new book in the library that you may be interested in. Please see the description below as it is the second edition and there have been some updates from the first edition. You can find this book at the next meeting on the library table.
The New Parkinson’s Disease Treatment Book
Partnering with Your Doctor To Get the Most from Your Medications
J. Eric Ahlskog, PhD, M
- The definitive guide for Parkinson’s Disease patients and their families
- Offers a crystal-clear, nuts-and-bolts approach to the treatment of PD
- Distilled from the author’s nearly thirty years of experience as a clinician and researcher
- Educates patients so that they can better team up with their doctors to do battle with the disease, streamlining the decision-making process and enhancing their treatment
New to this Edition:
- Updated chapters help patients and their caregivers develop a basic, core understanding of the diagnosis, treatment, course, and likely complications of the disease
- Thoroughly revised to reflect new protocols for medications
- The Second Edition also contains new information about the genetic and hereditary pattern of the disease; the effects of fluctuating hormones on disease symptoms; and other cutting-edge research.