The Shaky Times Newsletter
- PNMD Virtual Support Meetings
- Keep Moving
- Aaron Daley, Coordinator of the UCSF Parkinson’s Center
PNMD YouTube Channel
All of our recorded content is available on our YouTube channel – just click:
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Upcoming Events of Interest
Michael J Fox Third Thursday Webinars
Davis Phinney Foundation – Webinars (includes YOPD)
Parkinson’s Foundation Expert Briefing Webinars
American Parkinson Disease Association Webinars
Parkinson’s Voice Project
The PNMD Beat
These emails feature helpful articles. Links to recent topics below:
Welcome to the new PNMD Virtual Library bulletin. At least once per month we will highlight items related to Parkinson’s Disease (PD). It is designed for people who have PD as well as their friends, relatives and care partners. Since it may not be possible to get out information in paper format, we have moved to a virtual online format. Knowledge is power!
Recent resource additions:
Ever get confused with all the terms thrown around when talking about PD? Do you have to become a pharmacist or medical doctor first? Here is a quick way to understand the terms you read and may hear – from WebMD. Listed in alphabetical order; easy to browse’ contains a ton of embedded links should you want to learn more.
See this Google Doc for complete Glossary
How to live well with Parkinson’s online… Even if you’re homebound
Excellent and timely article from Davis Phinney Foundation. The title says it all. Even though connecting with people through hugs and handshakes and shared experiences is a key piece of living well, we are missing that in significant ways every day.
If you’re looking for ways to exercise, connect, and play online, the article includes a few of the options out there.
Mood: A Mind Guide to Parkinson’s Disease
Want to know more about PD and mood changes? This authoritative 64 page guide from Parkinson’s Foundation will guide you through key topics:
- About PD
- What is mood?
- Other mood issues
- Talking about changes in your mood
- Tips for caregivers
Mood and cognition: Non-motor symptoms
One-hour YouTube webinar from Parkinson Canada.
This webinar will help you from a practical perspective, on how to deal with relationship issues stemming from mood and cognitive changes that occur as a result of living with Parkinson’s disease. The webinar will also focus on various communication strategies.
Watch on YouTube: https://youtu.be/ehgnOj5hAk8
Check out other curated resources at our PNMD Library Page
The PNMD Survey Results
Derek Ransley, Coordinator of the Men’s Support Group, conducted a survey across all the support groups during the summer of 2019. He compiled the results, which have been published in The Shaky Times newsletter in six installments. If you would like to review the entire results document, click on the link below to download.
This poem was written by one of our own, Carol Peplinski. Enjoy!
You rob me of my voice, I still speak
You rob me of my rhythm, I still dance.
You rob me of my taste, I still eat
You rob me of my sense of smell, I still appreciate the roses.
You rob me of my leg muscle strength, I still walk
You rob me of my ability to hold a pen, I still write.
You rob me of my balance, I still practice yoga
You rob me of my happiness, I still smile.
You rob me of my swallow, I still drink
You rob me of my brain cells, I still think.
Parkinson’s, you are a Robber Baron, but I am still the keeper of this beautiful body.
By Carol Peplinski,
a PD survivor since 2008.
Shop on Amazon Smile and Support PNMD
Do you shop online at Amazon? Would you like to earn money to help support PNMD? Good news – you can do both at the same time! Here’s how:
AmazonSmile (smile.amazon.com) is a website operated by Amazon that lets customers enjoy the same wide selection of products, low prices, and convenient shopping features as on amazon.com. The difference is that when you shop on AmazonSmile, the AmazonSmile Foundation will donate 0.5% of the price of your eligible purchases to the charitable organization you select. You pay the same price for your items as you would on amazon.com, and the donation is automatically sent directly to your selected charity. (Eligible products are marked “Eligible for AmazonSmile donation” on their product detail pages.)
PNMD, as a registered 501(c)(3) non-profit organization, is eligible to receive donations from AmazonSmile. To get started generating donations for PNMD:
- Go to smile.amazon.com from the web browser on your computer or mobile device and log in using your existing Amazon account (or create an account if you don’t already have one).
- Before you start shopping, select Parkinson Network of Mt Diablo to receive the donations generated by your purchases. (The website will remember your selected charity on future visits, so you don’t have to do this step again unless you want to select a different charity.)
- Then just make your purchases and the donations generated will automatically be sent directly to PNMD.
- Remember to shop on the smile.amazon.com site in the future, as donations are not generated on the regular amazon.com site.
Now is a great time to start using smile.amazon.com ! Tell your family and friends too! Thanks in advance for your AmazonSmile donations!
If you have any questions, contact PNMD’s treasurer, Amy Van Voorhis, at email@example.com.