The PNMD Beat
These emails featuring helpful articles replace the former “Ronniegrams”. If you missed one, click the links below.
The PNMD Survey Results
Derek Ransley, Coordinator of the Men’s Support Group, conducted a survey across all the support groups during the summer of 2019. He compiled the results, which have been published in The Shaky Times newsletter in four installments. If you would like to review the entire results document, click on the link below.
Support PNMD with Amazon Smile Purchases
Amy Van Voorhis has set up PNMD to be a recipient of donations from the Amazon Smile program. If you shop on Amazon, you can make sure that Amazon Smile donates a portion of your shopping proceeds to PNMD! Here’s the scoop-
Shop on AmazonSmile and Earn Free Money for PNMD
Do you shop online at Amazon? Would you like to easily earn free money to help support PNMD? Good news – you can do both at the same time! Here’s how:
AmazonSmile (smile.amazon.com) is a website operated by Amazon that lets customers enjoy the same wide selection of products, low prices, and convenient shopping features as on amazon.com. The difference is that when you shop on AmazonSmile, the AmazonSmile Foundation will donate 0.5% of the price of your eligible purchases to the charitable organization you select. You pay the same price for your items as you would on amazon.com, and the donation is automatically sent directly to your selected charity. (Eligible products are marked “Eligible for AmazonSmile donation” on their product detail pages.)
PNMD, as a registered 501(c)(3) non-profit organization, is eligible to receive donations from AmazonSmile. To get started generating donations for PNMD:
- Go to smile.amazon.com from the web browser on your computer or mobile device and log in using your existing Amazon account (or create an account if you don’t already have one).
- Before you start shopping, select Parkinson Network of Mt Diablo to receive the donations generated by your purchases. (The website will remember your selected charity on future visits, so you don’t have to do this step again unless you want to select a different charity.)
- Then just make your purchases and the donations generated will automatically be sent directly to PNMD.
- Remember to shop on the smile.amazon.com site in the future, as donations are not generated on the regular amazon.com site.
With the holiday shopping season upon us, now is a great time to start using smile.amazon.com ! Tell your family and friends too! Thanks in advance for your AmazonSmile donations!
If you have any questions, contact PNMD’s treasurer, Amy Van Voorhis, at firstname.lastname@example.org.
Available at our Library Table at the General Meetings:
Medicine has triumphed in modern times, transforming birth, injury, and infectious disease from harrowing to manageable. But in the inevitable condition of aging and death, the goals of medicine seem too frequently to run counter to the interest of the human spirit. Nursing homes, preoccupied with safety, pin patients into railed beds and wheelchairs. Hospitals isolate the dying, checking for vital signs long after the goals of cure have become moot. Doctors, committed to extending life, continue to carry out devastating procedures that in the end extend suffering.
Gawande, a practicing surgeon, addresses his profession’s ultimate limitation, arguing that quality of life is the desired goal for patients and families. Gawande offers examples of freer, more socially fulfilling models for assisting the infirm and dependent elderly, and he explores the varieties of hospice care to demonstrate that a person’s last weeks or months may be rich and dignified.
Full of eye-opening research and riveting storytelling, Being Mortal asserts that medicine can comfort and enhance our experience even to the end, providing not only a good life but also a good end.
Here’s the synopsis:
Carol developed the first typical symptoms of Parkinson’s disease in 2011, but the diagnosis was soon changed to Lewy Body Dementia (LBD). The first physical symptoms were quickly followed by hallucinations, which at first were benign, but quickly became quite scary. While caring for Carol, Bob slowly, painfully learned how to cope with her physical as well as mental symptoms. This book describes those lessons in the hope that others caring for LBD patients will benefit from them, and their path down this road will be easier.
This poem was written by one of our own, Carol Peplinski. Enjoy!
You rob me of my voice, I still speak
You rob me of my rhythm, I still dance.
You rob me of my taste, I still eat
You rob me of my sense of smell, I still appreciate the roses.
You rob me of my leg muscle strength, I still walk
You rob me of my ability to hold a pen, I still write.
You rob me of my balance, I still practice yoga
You rob me of my happiness, I still smile.
You rob me of my swallow, I still drink
You rob me of my brain cells, I still think.
Parkinson’s, you are a Robber Baron, but I am still the keeper of this beautiful body.
By Carol Peplinski,
a PD survivor since 2008.
Reverse Parkinson’s Disease
by John Pepper
“John Pepper was diagnosed with Parkinson’s disease in 1992. After only six years of regular, energetic exercise, which has since been proven to slow down or even reverse Pd, and taking medication, which has also since been proven to slow down or reverse Pd, he no longer appears to have Pd, although he still has many of the symptoms. During the first ten years, if he stopped either the exercise or the medication, his symptom
s soon returned. He does not claim to be cured, but he is able to lead a normal life today. His positive attitude and determination to stay ahead of this terrifying condition highlight a new approach to dealing with Pd. John’s story is a portrayal of courage, showing the power of focusing on and being committed to one’s beliefs. One can greatly admire his determination and self-motivation, as seen in his conscious efforts to correct and adjust his movements, which in itself is no small achievement. His positive attitude has been further enhanced by the warm and encouraging support of his wife, Shirley, and family. This close family relationship has been a positive factor in helping John cope with his disability.” –Publisher description.
The New Parkinson’s Disease Treatment Book
Partnering with Your Doctor To Get the Most from Your Medications
J. Eric Ahlskog, PhD, M
- The definitive guide for Parkinson’s Disease patients and their families
- Offers a crystal-clear, nuts-and-bolts approach to the treatment of PD
- Distilled from the author’s nearly thirty years of experience as a clinician and researcher
- Educates patients so that they can better team up with their doctors to do battle with the disease, streamlining the decision-making process and enhancing their treatment
New to this Edition:
- Updated chapters help patients and their caregivers develop a basic, core understanding of the diagnosis, treatment, course, and likely complications of the disease
- Thoroughly revised to reflect new protocols for medications
- The Second Edition also contains new information about the genetic and hereditary pattern of the disease; the effects of fluctuating hormones on disease symptoms; and other cutting-edge research.