Resources

Current Parkinsons Information Resources and Useful Links

This is a list of some of the major sites of interest to Parkinson patients and caregivers. There are many, many, more, and if you know of others that you think would be of value and should be added to the list, please contact us at 925-939-4210. As far as we know, no resource listed here makes any kind of charge for their information.

Parkinson’s Institute Media Center – Videos

This list of video resources from the Video Library of the Parkinson’s Institute Media Center contains lots of interesting videos on multiple subjects that assist PDers and caregivers. Watch videos here.

PD ACTIVE

Group creates programs that support and care for people with Parkinson’s, family and caregivers in the Oakland and Berkeley area.

National Institutes of Health

This site links to many other sites, a bit of “surfing” can bring you to information such as: clinical trials, deep brain stimulation – too much information available to summarize here. Take a look.

Patients Like Me

Stories from many people with neurological conditions. You can chart your symptoms over time, rate your drugs and treatments, and track your progress against others.

Medline Plus

A goldmine of authoritative, up-to-date information from the National Library of Medicine. Site contains medical encyclopedia and dictionary; tutorials on common conditions, tests, and treatments; drug information; health news; and links to clinical trials.

Brain Talk

This started out at Massachusetts General Hospital and has grown into the largest community of neurology patients and caregivers on the internet.

Michael J. Fox Foundation for Parkinson’s Research

Information about the Michael J. Fox Foundation, their cutting edge funding philosophy, drugs available, information on living with Parkinson’s.

Parkinson’s Disease Foundation

Has basic information on Parkinson’s and some pamphlets and fact sheets.

PD Index

PD Index is a tool for discovering information about Parkinson’s disease on the Internet. More links than you “can shake a stick at”.

We Move

Complete information on all movement disorders, including Parkinson’s. Has forums and site
is used by both physicians and public.

Northwest Parkinson’s Foundation

Excellent bimonthly newsletter with up-to-date information on Parkinson’s. Site will keep
you current on world-wide news about Parkinson’s.

The Center for Neurologic Study

This is a huge site covering many aspects of neurologic diseases. Our interest in this site mainly concerns exercise, which has been shown to be of huge benefit to Parkinson’s patients. For some basic exercises go to: Exercises For The Parkinson Patient

Sit and Be Fit

This is web site for the PBS series. It has recommendations for specific exercises, including ones for Parkinson’s patients. Just follow the links.

Charity Navigator

As interested as we are in donating to those organizations which concentrate on Parkinson’s issues, there may come a time when we want to contribute to another cause. That’s when a site such as Charity Navigator is very helpful. Charity Navigator takes an in-depth look at the charity. It evaluates the financial health of over 5,400 of America’s largest charities and rates each charity. Did you know that the Red Cross gets three stars while Oxfam America gets four?

 

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