Upcoming Programs
PNMD in-person support groups – Sat. June 17
10:00 am – Support Groups
11:30 am – Coffee and Speaker in the Oak Room
Topic: Occupational Therapy for Parkinson’s Disease
Speaker: Alexandra Byron from Kaiser
Grace Presbyterian Church
2100 Tice Valley Blvd., Walnut Creek
Tri-Valley in-person support group – Sat. June 10
10:00 am – 10:30 am: Conversation and Beverages
10:30 am – 12 noon: Speaker or presentation, Support Groups
Lynnewood United Methodist Church, Fellowship Hall
4444 Black Ave., Pleasanton, CA
May Lunch and Learn Speaker
Wednesday, May 17 – 12 noon – 1 pm on Zoom
If you do not receive PNMD emails and would like a link to join this presentation, please email your request to web@pnmd.net.
In-Person Support Groups
Walnut Creek – Third Saturday, 10 – 11:15 am – Contact:
Women with Parkinson’s – Rosemary Way, 925-476-5661
Men with Parkinson’s – Mitch Morrison, morrisonml@hotmail.com,
781-964-2345
Caregivers – Jan Browne, janbrowne3@gmail.com, 925-899-6685
Linda Leong, linda@mckayleonglaw.com, 925-944-3582
Tri-Valley – Second Saturday, 10:30 am – 12 noon – Contact:
Mary Behrendt, trivalley@pnmd.net, 925-989-0209
Virtual Support Groups
Women with Parkinson’s – 1st Saturday, 10-11 am – Contact:
Alexa Donahoe, alexaleedonahoe@gmail.com, 925-597-5099
Men with Parkinson’s – Contact:
-Team A – 1st Saturday, 10 – 11:30 am
Dennis Krauss, doctordsk7@gmail.com, 401-864-8438
-Team B – 1st Saturday, 10:30 am – Noon
Mark Ouyang, mark.ouyang@gmail.com, 925-200-1952
Phil Hornig, phornig221@gmail.com, 925-519-9258
-Team C – 2nd Tuesday, 2-3 pm
Rick Stevens, president@pnmd.net, 925-939-4210
Caregivers – 1st Friday, 1 – 2:15 pm – Contact:
Lorie McGuinness, loriemcguinness@gmail.com, 925-980-4011
Donna Campo, a.campo@comcast.net, 925-324-0998
Recordings of Previous Programs
- Dopamine stem cell replacement therapies for PD
- What if we could reverse Parkinsons?
- PD GENEration: Mapping the future of PD
- What is urinary dysfunction?
- Scientists Develop Glove that Eliminates Tremor
- Un-syncing the Mind Can Help Parkinson’s Patients
- Neuroplasticity, Exercise, and Parkinson’s
- How to Walk to Avoid Falls
Slides from April General Meeting – Aaron Daley:
PD 2023 Updates Resources and Research- PNMD
Topic: Aging in Place
Speaker: Bryan Riddle
Slides from Lunch and Learn:
Aging In Place PD 5.1.23
March 2023 Lunch and Learn Recording
Topic: Cognitive Changes in Parkinson’s
Speaker: Alexis Rosen, PhD
Presentation Slides – Rosen – 3-15-23
- Gait, Balance and Foot Concerns
- BEST way to prevent falls
- The MIND diet for PD
- Focused Ultrasound
Topic: DBS Roundtable
Speaker: Phil Hornig
- Living with Young-onset Parkinson’s
- YES, And..eXercise
- Addressing constipation in PD
- What’s the Latest on Parkinson’s Disease?
Topic: Understanding and Responding to Dementia-Related Behaviors in Parkinson’s and Alzheimer’s
Speaker: Rita Hargrave, MD
- What’s New in Parkinson’s
- Music as Medicine
- Parkinson’s Patients Fight Back
- Gifted: Invisible Disability
- Stages of Parkinson’s Disease
- The Parkinson’s You Don’t See: Cognitive and Non-Motor
- What It’s Like to Have Parkinson’s
- Cardio Strength
September 2022 Virtual Program
- PNMD Introduction
- Creating New Neurons to Reverse PD
- Emerging Therapies for PD
- Parkinson’s Exercise Essentials
- Geriatric Care Management
September 2022 Lunch and Learn Recording
Topic: Improvisation and Story Telling in Parkinson’s Disease
Speaker: Robert Cochrane
August 2022 Virtual Program Link
- Managing Parkinson’s Motor Symptoms
- Pain and Parkinson’s
- Walk More Normally
- Helpful Hand Exercises
- Getting up from a Fall
- Everyday Hacks for Living with Parkinson’s
- How to take Levadopa
- Preventing Falls and Falling “Safely”
- Questions on emerging therapies for Parkinson’s
- Urinary disfunction in Parkinson’s
- Brain and body fitness
June 2022 Lunch and Learn Recording
Topic: More Energy and Mental Clarity
Speaker: Dr. Kirsten Allott, Naturopathic Physician
Download Slides from Lunch and Learn
- Emerging Therapies for Parkinson’s
- Stem Cells and Parkinson’s Disease
- Vibrating Gloves Could Counteract PD
- Light Therapy is promising treatment
- Focused ultrasound alternative to DBS
May 2022 Lunch and Learn Recording
Topic: Adaptive Equipment for Activities of Daily Living and Safe Transfers
Speaker: June Kim Ryujin – Occupational Therapist
PD OT class June Kim – Slides
- Future of Parkinson’s Treatments
- Power of LSTV BIG exercise training
- Learning to Live with Parkinson’s
- Hacking Your Memory with Sleep
April 2022 Lunch and Learn Recording
Topic: Speech and Language in Parkinson’s Disease
Speaker: Sarah Talach, M.S., CCC-SLP
Certified Speech Therapist
- How Exercise Moderates Parkinson’s
- Top Five Hand Exercises
- Practical Tips for Better Sleep
March Lunch and Learn Recording
Topic: Hospice and Palliative Care
Speaker: Stephanie Marquet, MD
Hospice of the East Bay
- Rock Steady Boxing
- The MIND diet
- Tips for handling depression and anxiety
- Bio-medical treatments for PD
February 2022 Lunch and Learn Recording
Topic: Everyday Resiliency for People Living with Parkinson’s and their Care Partners
Speaker: Judy Long, BCC
USCF MERI Center for Education in Palliative Care
- Living Well with Parkinson’s Disease
- Excellent exercise tutorial starting with how to do squats.
- Understanding Parkinson’s – overview by Nature magazine.
- Living into your 90’soriginally aired on 60 Minutes.
January 2022 Lunch and Learn Recording
Topic: Parkinson’s Disease: Transmitters and Proteins
Speaker: Peter Ralston, MD, UCSF Professor Emeritus
Notes-Ralston PD presentation
Slides-Ralston PD Presentation
- Summary of Parkinson’s Disease and Medication.
- Parkinson’s Disease and Medication – Expert Briefing – full presentation.
- PD Fit Club – Petra Fibrichova. A preview of exercises included in the in-person exercise class.
- Brian Grant – Dealing with PD. The retired NBA player diagnosed with early-onset PD discusses his book.
December Lunch & Learn Recording
Topic: An Hour of Joyous Singing
Leader: Judi Spencer, Music Director
World Parkinson’s Coalition Choir
- Parkinson’s News Today website tour
- Parkinson’s 360: Looking Ahead with PD
- Brene Brown’s Life Advice
- Parkinson’s Exercise Essentials (Davis Phinney)
Topic: Psilocybin to Treat Depression and Anxiety in PD
Speaker: Ellen Bradley, MD
Weill Institute for Neurosciences, UCSF
- Research on genetic treatment for PD – Creating new neurons
- Easy to do exercises
- Tips and tricks for managing Parkinson’s
- How to walk normally
Topic: Parkinson’s Disease Dementia Caregiving
Speaker: Mary Cochran Abraham, NP
Kaiser Memory Center
Slides for October Lunch and Learn
Other resources for October Lunch and Learn:
CGs GUIDE TO UNDERSTANDING DEMENTIA
COMPASSIONATE COMMUNICATIONS
10 REAL LIFE STRATEGIES
Links to resources for Oct Lunch and Learn
September Virtual Program Link
- How to treat PD with lifestyle choices
- Dispelling PD myths
- Going “big and loud” to keep PD at bay
- Alan Watts – The most important lesson….
September Lunch and Learn Link
Topic: The Gut Brain Connection in Parkinson’s Disease
Speaker: Joseph Bartolone, Registered Dietician
Link to Sept Lunch and Learn Slides
- Are there new ways of treating Parkinson’s?
- Trial of new treatment for Parkinson’s
- Linda Ronstadt speaks about coping with PD
- Exercise and Parkinson’s progression
- Understanding mindfulness: a quick tour
- How mindfulness changes the emotional life of our brains (TED Talk)
- Understanding our sleep cycle (animation)
- How sleep changes over time – conversation with Davis Phinney
- Buddy up – Ask the MD how to end isolation
Topic: Planning for Incapacity: Estate Law and End of Life Planning
Speaker: Joan Grimes, Attorney
- Geriatric care manager. Interview with Margot Nijsure: questions, answers and guidance on managing PD.
- Brené Brown on empathy. Engaging animation. Explores the core of our emotional being.
- Professor Roger Barker from Cambridge University explores current and future of treatment research.
- Neurologist Eric Ahlskog from the Mayo Clinic breaks misconceptions regarding treatment for Parkinson disease.
Topic: The PD Avengers
Speaker: Tim Hague
Founding Member of PD Avengers
- Explore a wealth of valuable resources from Parkinson Movement Disorder Alliance including “Lunch with Docs.”
- Provoking & fascinating recent interview with Michael J Fox.
- Ask the MD. Simple advice on exercise.
- Parkinson’s expert Davis Phinney talks about power of affirmation, and the Zen of vacuuming.
- Judy’s story of living with PD, how DBS changed her life, and how to advocate for oneself.
- Parkinson’s Exercise Part 3 offers essential advice on developing goals, tracking progress.
- Best of the web: American Parkinson’s Disease Association website tour
- Look Closer: a one-minute video to put things in perspective
- Parkinson’s Story Exchange: powerful video stories
- Ask the MD: Myths about Levodopa
- Demonstration: How to do LSVT BIG exercises
- The LARGE 10 Parkinson’s Program is derived from LSVT, just simpler
- Parkinson’s Minute: Apathy. Dr. Bas Bloem gives an overview of apathy & PD
- Ending Parkinson’s disease: interview with Dr. Ray Dorsey, co-author of Ending Parkinson’s
Speaker: Mary Cochran Abraham, NP
Kaiser Permanente Memory Center
Topic: Deep Brain Stimulation: An Overview of DBS
- Best of the Web: Mediflix. Tour of a new video site focused on Parkinson’s.
- How PD can affect your visual world.
- Exercise is medicine for PD. Hand exercises by Petra Fibrichova.
- Being diagnosed with PD can be life changing.
- Exercise keeps PD on the ropes.
- New non-surgical technique to help control tremors.
- Is it true that the brain can heal itself? Lessons from salamanders
Speaker: Ethan Brown, MD
Topic: The Microbiome in Parkinson’s Disease
- Davis Phinney Foundation website tour
- Whispered ‘Ah’ exercise with Lena Hart
- Ask the Parkinson’s expert: Physical therapy
- World first trial for Parkinson’s Disease
- Parkinson’s Exercise Essentials – Part 2
Speaker: Bill Hammond, Computer Club of Rossmoor
Topic: Tips for Zooming
Speaker: Caroline Racine Belkoura, PhD, UCSF
Topic: Managing Stressors in the Time of COVID
- Best of the Web: Michael J Fox website tour
- Ask the PhD: New technologies to treat Parkinson’s
- Professor Bastiaan Bloem & Ending Parkinson’s
- Parkinson Exercise Essentials: Part 1 (INTRO)
- Jimmy Choi: Impact of Parkinson’s and the Unknown
Speaker: Aaron Daley, Answering Your Questions
Contact information:
Aaron Daley, MA- PD Center Coordinator
University of California, San Francisco
Parkinson’s Foundation Center of Excellence
350 Parnassus, Suite 700
San Francisco, CA 94117-0114
415-476-9276 (office)
Aaron.daley@ucsf.edu
- Best of the Web: Nonmotor symptoms of PD
- Understanding sleep disturbances
- Movement tips for managing PD
- Canine companions: Do you need a dog?
- Personal PD journey
Davis Phinney Foundation Sidekicks Program
Speaker: Kayla Ferguson
November Recorded Program Link
- How to boost brain power
- How to take levodopa for Parkinson’s and why
- Chair yoga and tai-chi workout
- Michael J. Fox’s 2018 interview: his fight
October Lunch and Learn Program
How Parkinson’s Can Affect Speech, Swallowing and Voice
Speaker: Sarah Talach, Talach Speech Therapy, Inc.
- Parkinson’s Voice Project: How to preserve your voice
- AudAbility and MusicWorx: a music therapy approach for helping People with Parkinson’s
- History of the Parkinson’s Voice Project
- Michaela Lien: Exercises for People with Parkinson’s
- Linda Fodrini-Johnson, Eldercare:
Being Prepared in the time of COVID-19 - Alexander Technique: How to Sit Optimally
-
TOPAZ – Short Intro to a Parkinson’s Foundation clinical trial on bone health in Parkinson’s
- Carol Fisher: Gentle Yoga for Every Body
- Petra Fibrichova: Urban Pole Walking
- Lena Hart: Alexander Technique for People Living with PD
- Robert Cochrane on Improv to Improve Parkinson’s Disease
- Dr. Madan Kataria presents Laughter Yoga
- Sheryl Sandberg and Dr. Adam Grant: Resilience in a Crisis
- Dr. Rick Hanson, UC Berkeley: Being Resilient During Coronavirus
- Dr. Julia Allenyne, PMD Alliance: Practicing Wellness to Build Resilience
- Lena Hart on Alexander Technique
- Dr. Gerred Popejoy on Nordic Pole Working
- Aaron Daley, UCSF, answering frequently asked questions
- Carol Fisher leading a yoga relaxation exercise
- Heather Kennedy on Living with Parkinson’s
Parkinson Network of Mt. Diablo 