Meetings

Upcoming Programs

PNMD in-person support groups – Sat. Oct. 15

10:00 am –  Support Groups begin
11:30 am –   Coffee and Conversation in the Oak Room

          Speaker: Sherrie E. Gould, MSN, NP-C 
          Topic: More Than Motor Symptoms

Grace Presbyterian Church
2100 Tice Valley Blvd.,  Walnut Creek

For additional information:  In-person meeting update March 2022


Tri-Valley in-person support group – Sat. Oct. 8

10:30 am – 12 noon, Lynnewood United Methodist Church, Fellowship Hall
4444 Black Ave., Pleasanton, CA 


Support Group Meetings on Zoom

PNMD has established online Zoom Support Group meetings to connect with one another.  For more information, contact the respective Zoom group facilitator with your interest and questions.

Women with Parkinson’s – 1st Saturday, 10-11 am 
     contact Alexa Donahoe, alexaleedonahoe@gmail.com, 925-597-5099

Men with Parkinson’s – Call for times and groups 
    contact Derek Ransley, dransley@comcast.net, 925-944-0162
    -Team A – Dennis Krauss – 1st Saturday
    -Team B – Mark Ouyang/Phil Hornig – 1st Saturday
    -Team C – Derek Ransley – 2nd Tuesday

Caregivers – 1st Friday, 1 – 2:15 pm 
     contact Lorie McGuinness, loriemcguinness@gmail.com, 925-980-4011 
            Donna Campo, a.campo@comcast.net, 925-324-0998


Recordings of Previous Programs

September 2022 Virtual Program

  • PNMD Introduction
  • Creating New Neurons to Reverse PD
  • Emerging Therapies for PD
  • Parkinson’s Exercise Essentials
  • Geriatric Care Management

September 2022 Lunch and Learn Recording

Topic: Improvisation and Story Telling in Parkinson’s Disease
Speaker: Robert Cochrane

August 2022 Virtual Program Link

  • Managing Parkinson’s Motor Symptoms
  • Pain and Parkinson’s
  • Walk More Normally
  • Helpful Hand Exercises
  • Getting up from a Fall

July 2022 Virtual Program

  • Everyday Hacks for Living with Parkinson’s
  • How to take Levadopa
  • Preventing Falls and Falling “Safely”

June 2022 Virtual Program

  • Questions on emerging therapies for Parkinson’s
  • Urinary disfunction in Parkinson’s
  • Brain and body fitness

June 2022 Lunch and Learn Recording

Topic: More Energy and Mental Clarity
Speaker: Dr. Kirsten Allott, Naturopathic Physician

Download Slides from Lunch and Learn

May 2022 Virtual Program

  • Emerging Therapies for Parkinson’s
  • Stem Cells and Parkinson’s Disease
  • Vibrating Gloves Could Counteract PD
  • Light Therapy is promising treatment
  • Focused ultrasound alternative to DBS

May 2022 Lunch and Learn Recording

Topic:  Adaptive Equipment for Activities of Daily Living and Safe Transfers
Speaker: June Kim Ryujin – Occupational Therapist

PD OT class June Kim – Slides

April 2022 Virtual Program

  • Future of Parkinson’s Treatments
  • Power of LSTV BIG exercise training
  • Learning to Live with Parkinson’s
  • Hacking Your Memory with Sleep

April 2022 Lunch and Learn Recording

Topic: Speech and Language in Parkinson’s Disease
Speaker:  Sarah Talach, M.S., CCC-SLP
Certified Speech Therapist

March 2022 Virtual Program

  • How Exercise Moderates Parkinson’s
  • Top Five Hand Exercises
  • Practical Tips for Better Sleep

March Lunch and Learn Recording

Topic: Hospice and Palliative Care
Speaker: Stephanie Marquet, MD
Hospice of the East Bay

February 2022 Virtual Program

  • Rock Steady Boxing
  • The MIND diet
  • Tips for handling depression and anxiety
  • Bio-medical treatments for PD

February 2022 Lunch and Learn Recording

Topic:  Everyday Resiliency for People Living with Parkinson’s and their Care Partners
Speaker:  Judy Long, BCC
USCF MERI Center for Education in Palliative Care

January 2022 Virtual Program

  • Living Well with Parkinson’s Disease 
  • Excellent exercise tutorial starting with how to do squats. 
  • Understanding Parkinson’s – overview by Nature magazine. 
  •  Living into your 90’soriginally aired on 60 Minutes

January 2022 Lunch and Learn Recording

Topic: Parkinson’s Disease: Transmitters and Proteins
Speaker:  Peter Ralston, MD, UCSF Professor Emeritus
Notes-Ralston PD presentation 
Slides-Ralston PD Presentation

December Virtual Program Link

  • Summary of Parkinson’s Disease and Medication. 
  • Parkinson’s Disease and Medication – Expert Briefing – full presentation.
  •  PD Fit Club – Petra Fibrichova. A preview of exercises included in the in-person exercise class.
  •  Brian Grant – Dealing with PD. The retired NBA player diagnosed with early-onset PD discusses his book.

December Lunch & Learn Recording

Topic:  An Hour of Joyous Singing
Leader:  Judi Spencer, Music Director
World Parkinson’s Coalition Choir

November Virtual Program Link

  • Parkinson’s News Today website tour
  • Parkinson’s 360: Looking Ahead with PD
  • Brene Brown’s Life Advice
  • Parkinson’s Exercise Essentials (Davis Phinney)

November Lunch and Learn Link

Topic: Psilocybin to Treat Depression and Anxiety in PD
Speaker:  Ellen Bradley, MD
        Weill Institute for Neurosciences, UCSF

October Virtual Program Link

  • Research on genetic treatment for PD – Creating new neurons
  • Easy to do exercises
  • Tips and tricks for managing Parkinson’s
  • How to walk normally

October Lunch and Learn Link

Topic: Parkinson’s Disease Dementia Caregiving
Speaker:  Mary Cochran Abraham, NP
       Kaiser Memory Center

Slides for October Lunch and Learn

Other resources for October Lunch and Learn:
CGs GUIDE TO UNDERSTANDING DEMENTIA
COMPASSIONATE COMMUNICATIONS
10 REAL LIFE STRATEGIES
Links to resources for Oct Lunch and Learn

September Virtual Program Link

  • How to treat PD with lifestyle choices
  • Dispelling PD myths
  • Going “big and loud” to keep PD at bay
  • Alan Watts – The most important lesson….

September Lunch and Learn Link

Topic:  The Gut Brain Connection in Parkinson’s Disease
Speaker:  Joseph Bartolone, Registered Dietician

Link to Sept Lunch and Learn Slides

August Virtual Program Link

  • Are there new ways of treating Parkinson’s?
  • Trial of new treatment for Parkinson’s
  • Linda Ronstadt speaks about coping with PD
  • Exercise and Parkinson’s progression

July Virtual Program Link

  • Understanding mindfulness: a quick tour
  • How mindfulness changes the emotional life of our brains (TED Talk)
  • Understanding our sleep cycle (animation)
  • How sleep changes over time – conversation with Davis Phinney
  • Buddy up – Ask the MD how to end isolation

July Lunch and Learn Link

Topic:  Planning for Incapacity:  Estate Law and End of Life Planning
Speaker:  Joan Grimes, Attorney

June Virtual Program Link

  • Geriatric care manager. Interview with Margot Nijsure: questions, answers and guidance on managing PD. 
  • Brené Brown on empathy. Engaging animation. Explores the core of our emotional being. 
  • Professor Roger Barker from Cambridge University explores current and future of treatment research. 
  • Neurologist Eric Ahlskog from the Mayo Clinic breaks misconceptions regarding treatment for Parkinson disease. 

June Lunch and Learn Link

Topic:  The PD Avengers
Speaker:  Tim Hague
     Founding Member of PD Avengers

May Virtual Program Link

  • Explore a wealth of valuable resources from Parkinson Movement Disorder Alliance including “Lunch with Docs.”
  • Provoking & fascinating recent interview with Michael J Fox. 
  • Ask the MD. Simple advice on exercise.
  • Parkinson’s expert Davis Phinney talks about power of affirmation, and the Zen of vacuuming.
  • Judy’s story of living with PD, how DBS changed her life, and how to advocate for oneself.
  • Parkinson’s Exercise Part 3 offers essential advice on developing goals, tracking progress. 

April Virtual Program Link

  • Best of the web:  American Parkinson’s Disease Association website tour
  • Look Closer: a one-minute video to put things in perspective
  • Parkinson’s Story Exchange:  powerful video stories
  • Ask the MD: Myths about Levodopa
  • Demonstration: How to do LSVT BIG exercises
  • The LARGE 10 Parkinson’s Program is derived from LSVT, just simpler
  • Parkinson’s Minute: Apathy. Dr. Bas Bloem gives an overview of apathy & PD
  • Ending Parkinson’s disease: interview with Dr. Ray Dorsey, co-author of Ending Parkinson’s

April Lunch and Learn Link

Speaker: Mary Cochran Abraham, NP
Kaiser Permanente Memory Center
Topic: Deep Brain Stimulation: An Overview of DBS

March Virtual Program Link

  • Best of the Web: Mediflix. Tour of a new video site focused on Parkinson’s.
  • How PD can affect your visual world.
  • Exercise is medicine for PD. Hand exercises by Petra Fibrichova.
  • Being diagnosed with PD can be life changing. 
  • Exercise keeps PD on the ropes.
  • New non-surgical technique to help control tremors.
  • Is it true that the brain can heal itself? Lessons from salamanders

March Lunch and Learn Link

Speaker: Ethan Brown, MD
Topic: The Microbiome in Parkinson’s Disease

Slides – Microbiome in PD

February Virtual Program Link

  • Davis Phinney Foundation website tour
  • Whispered ‘Ah’ exercise with Lena Hart
  • Ask the Parkinson’s expert: Physical therapy
  • World first trial for Parkinson’s Disease
  • Parkinson’s Exercise Essentials – Part 2

February Lunch and Learn Link

Speaker: Bill Hammond, Computer Club of Rossmoor
Topic: Tips for Zooming

January Lunch and Learn Link

Speaker: Caroline Racine Belkoura, PhD, UCSF
Topic: Managing Stressors in the Time of COVID

      Slides for Managing Stressors

January Virtual Program Link

  • Best of the Web: Michael J Fox website tour
  • Ask the PhD: New technologies to treat Parkinson’s
  • Professor Bastiaan Bloem & Ending Parkinson’s
  • Parkinson Exercise Essentials: Part 1 (INTRO)
  • Jimmy Choi: Impact of Parkinson’s and the Unknown

December Lunch and Learn Link

Speaker:  Aaron Daley, Answering Your Questions

Contact information:
Aaron Daley, MA- PD Center Coordinator
University of California, San Francisco
Parkinson’s Foundation Center of Excellence
350 Parnassus, Suite 700
San Francisco, CA 94117-0114
415-476-9276 (office)
Aaron.daley@ucsf.edu

December Virtual Program Link

  • Best of the Web: Nonmotor symptoms of PD
  • Understanding sleep disturbances
  • Movement tips for managing PD
  • Canine companions: Do you need a dog?
  • Personal PD journey

November Lunch and Learn Link

Davis Phinney Foundation Sidekicks Program
Speaker:  Kayla Ferguson

Sidekicks Slide Deck Download

November Recorded Program Link

  • How to boost brain power
  • How to take levodopa for Parkinson’s and why
  • Chair yoga and tai-chi workout
  • Michael J. Fox’s 2018 interview: his fight

October Lunch and Learn Program

How Parkinson’s Can Affect Speech, Swallowing and Voice
Speaker:  Sarah Talach, Talach Speech Therapy, Inc.

October Recorded Program Link

  • Parkinson’s Voice Project: How to preserve your voice
  • AudAbility and MusicWorx: a music therapy approach for helping People with Parkinson’s
  • History of the Parkinson’s Voice Project

September Program Link

  • Michaela Lien: Exercises for People with Parkinson’s
  • Linda Fodrini-Johnson, Eldercare:
    Being Prepared in the time of COVID-19
  • Alexander Technique: How to Sit Optimally
  • TOPAZ – Short Intro to a Parkinson’s Foundation clinical trial on bone health in Parkinson’s

August Meeting Link 

  • Carol Fisher: Gentle Yoga for Every Body
  • Petra Fibrichova: Urban Pole Walking
  • Lena Hart: Alexander Technique for People Living with PD

July Meeting Link

  • Robert Cochrane on Improv to Improve Parkinson’s Disease
  • Dr. Madan Kataria presents Laughter Yoga

June Meeting Link

  • Sheryl Sandberg and Dr. Adam Grant:  Resilience in a Crisis
  • Dr. Rick Hanson, UC Berkeley:  Being Resilient During Coronavirus
  • Dr. Julia Allenyne, PMD Alliance:  Practicing Wellness to Build Resilience

May Meeting Link

  • Lena Hart on Alexander Technique
  • Dr. Gerred Popejoy on Nordic Pole Working
  • Aaron Daley, UCSF, answering frequently asked questions

April Meeting Link

  • Carol Fisher leading a yoga relaxation exercise
  • Heather Kennedy on Living with Parkinson’s

FEEDBACK- Please give us your feedback from the meetings and the presentations. It helps determine content for future of PNMD events. Click on this link here-   Feedback 

 

 

 

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